Showing posts with label Miscellaneous Patient Education Links. Show all posts
Showing posts with label Miscellaneous Patient Education Links. Show all posts

Thursday, January 30, 2014

Freezing in Parkinson's Disease



Not all patient’s with Parkinson’s experience “freezing” (a temporary inability to move); but in patients who are prone to freezing episodes, FALLING is a risk. 

Parkinson's disease message design(Freezing does not only occur when walking, but can also be observed when eating, lifting a cup, or trying to remember something.)         
 What triggers a freezing episode? 
 
It’s unpredictable, but freezing usually happens when something interrupts the usual flow of movement or normal sequence of events—it can happen during walking, eating, lifting a cup—or trying to remember something . . .

Patient’s who experiencing a freezing episode literally feel “stuck” to the floor or to their chair. 
  
Some of the typical triggers for a "freezing" episodes that occur while walking include:

  • Walking towards doorways, chairs, or around obstacles
  • Turning or changing directions, especially in a small space
  • Entering an elevator
  • Becoming distracted by another task or conversation when walking
  • Crowded, cluttered spaces or a highly patterned floor
  • Parkinson’s medication wearing off or not working very well
  • Walking from one texture of flooring to another (for example: going from smooth floor to carpet, or vice versa)

Many patients who experience "freezing" may notice that different tricks (or "cues") can help them "unfreeze."  Here are some ideas to consider:

·  Remain calm, take a deep breath, and think it through.(No one should prod or pull the patient—they could fall.)
·  Concentrate on shifting the weight to one leg—THEN take a step.
·  Change direction:  step sideways first, THEN go forward
·  Shift the focus to another movement (raise an arm, point to the ceiling, etc.); THEN restart.
·  Say: “One, Two, Three—STEP”:  THEN restart  (or start humming a rhythmic tune)
·  Carry a laser pointer—shine it in front of the foot and step on the light—this is a “restart cue” (there are actually special canes made with lasers embedded for Parkinson’s patients.)
·  Tape the floor of trouble spots in the room (corners or furniture or door thresholds) as a visual cue (step on or over the tape).
·  March in place when coming to a halt at a trouble spot to keep moving and avoid a "freeze."
·  Step over an imaginary line to take the first step.


Check out these links for more information about "Freezing" in Parkinson's Disease (or just learn more about Parkinson's in general:


Freezing in Parkinson's (pdf version from the UK Parkinson's webpage)











Thursday, March 04, 2010

Links to Spanish Language Health Information (Patient Instructions in Spanish)

Spanish Discharge Instructions and other Health Teaching  

When making blog articles about specific healthcare teaching issues I look for links to reliable Spanish translations.  So many Google searchers are ending up at a recent blog entry that included some basic English/Spanish translation I decided to make a more helpful page that will lead searchers more directly to helpful and reliable Spanish language health information.  
Don't forget to use the search box in the right hand column to look further, but for now this page provides a variety of helpful links for the Spanish-speaking patient. 

Best Spanish Translation Books for Healthcare Workers:

I have used many Spanish/English healthcare translation books. Far and away my favorites, and the two that I recommend are Medical Spanish, An Instant Translator, by Nasr & Cordero, published by W.B. Saunders  and Spanish for Health Care Professionals, by W.C. Harvey, published by Barron's. 

Miscellaneous Spanish Language Health Information Links: 

Discharge instructions in Spanish for TURP (Transurethral Resection of the Prostate): "Reseccion Trans Uretral De La Prostata, Instrucciones Para Cuidado En Casa.”
  • Allergy and Asthma Information in Spanish: Spanish translations from the American Academy of Allergy Asthma & Immunology including information about allergies, asthma, cough and more. Información sobre alergias, asma, tos y más.
  • Topics in Spanish from the National Digestive Diseases Information Clearinghouse including information about colon polyps, diarrhea, constipation, cirrhosis, food borne illnesses, various types of hepatitis and more. Información sobre los pólipos de colon, diarrea, estreñimiento, cirrosis, enfermedades transmitidas por los alimentos, diversos tipos de hepatitis y mucho más.
  • Information in Spanish about head lice or "Piojos de la cabeza":  .Center's for Disease Control and Prevention, Piojos de la cabeza and National Pediculosis Organization, Piojos de la Cabeza en Espanol.
  • Consumer information about safety of cribs, drywall, fireworks, and more: Noticias sobre Cunas, paneles de yeso, fuegos artificiales y mas . . .   U.S. Consumer Product Safely Commission en ESPAÑOL with updates on the latest product safety and recalls: CPSC Spanish language page.  La CPSC, es una entidad reglamentaria federal, que protege al público contra riesgos irrazonables, lesiones y muertes asociadas con productos de consumo.
  • Care of the JP (Jackson Pratt) drain from the National Institutes of Health:  Instrucciones después de la inserción de un tubo de drenaje "JP" y otras drenajes.
  • Osteoporosis information from the Dairy Council of California:  Mantengan sus Huesos Fuertes, Consuman Productos Lácteos.
  • Healthy eating and Meal Planning from the Dairy Council fo California:  Articulos y recetas sobre la Alimentación Saludable.
  • National Institute of Health, a Variety of Surgery-Related Topics for download in Spanish.  Pre-operative/Pre-procedure Instructions, after care for these procedures: Biopsy, Bone Marrow Biopsy, Breast Biopsy, Bronchoscopy/Laryngoscopy/Esophagoscopy, Cardiac Catheterization Test, Catheter-Based Treatment, Colonoscopy, Dialysis Access Procedure, Drain Insertion, Endoscopy, Eye Surgery, Gynecologic Procedure, Interscalene Block, Kidney Biopsy, Montgomery Tube/Tracheostomy Placement, Muscle/Nerve Biopsy, Oral Surgery Sinus Precautions, Periodontal Surgery, Port-a-Cath insertion/removal, Septoplasty, Strabismus Surgery (for adults), Strabismus Surgery (for children), Tenkhoff Catheter Insertion, Tenkhoff Catheter Removal, Urological Surgery: cystoscopy, ureteral stent insertion/removal, bladder/prostate biopsy and Postoperative procedure/anesthesia instructions.  Pre-operative/Pre-procedure instrucciones, después de cuidar de estos procedimientos: Biopsia, Biopsia de médula ósea, biopsia de mama, Broncoscopia / Laringoscopia / Esofagoscopia, Cateterismo Cardíaco de prueba, basada en el catéter de tratamiento, la colonoscopia, la diálisis Procedimiento de Acceso, la inserción del drenaje, Endoscopia, Cirugía ocular, Gynecologic Procedimiento, interescalénico Block, la biopsia renal, Montgomery Tube / traqueostomía de nivel, músculo / biopsia de nervio, cirugía oral Sinus Precauciones, cirugía periodontal, Port-a-Cath de inserción / extracción, septoplastia, cirugía de estrabismo (para adultos), estrabismo Cirugía (para niños), Tenkhoff la inserción del catéter, Tenkhoff remoción del catéter, Cirugía urológica: la cistoscopia, la inserción de un stent ureteral / eliminación, de la vejiga / biopsia de próstata y el procedimiento postoperatorio / anestesia Instrucciones.
  • Kidshealth, Teaching your kids about menstruation and puberty.  Talking to your child about Menstruation. Hablar con su hija sobre la menstruación.
  • 24 hour urine test, patient instructions:  Procedimiento: Recolecta una muestra de orina de 24 horas.  
  • Healthfinder.gov in Spanish.  A wealth of health information translated to Spanish is available here, including an encyclopedia of health topics from "the most reliable sources."  Healthfinder.gov en español le ofrece la información más actualizada para que usted y sus seres queridos se mantengan saludables con una Enciclopedia de temas de la salud de las fuentes más confiables.
  • Disaster Preparedness (Spanish Version). Spanish version of suggestions for readiness in the event of a natural or man-made disaster.  Preparación para Desastres asesoramiento para la preparación en caso de un desastre natural o de origen humano.
  • Caringbridge Website keeps loved ones in touch during times of crisis, information for Spanish-speaking patients and families.  Un sitio web CaringBridge ayuda a mantener informados a los seres queridos durante momentos difíciles. Por otra parte, los familiares y amigos brindan apoyo al paciente y a las personas encargadas de su cuidado a través de los mensajes del libro de visitas.


Thursday, January 21, 2010

Patient Education Brochures and Booklets are Still Essential Despite the Internet: Where to Find Them?

A Small Cost to the Provider, but Invaluable to the Public and the Patient

I mentioned in another blog post that I'm a bag lady when it comes to medical brochures.  I expect to pick up something of interest if I happen to visit a health fair or health-related event.  The vendors are not going to attract my interest by merely displaying a poster or a table-top video display.  I want to pick up something that I can read when I'm ready.  "Readiness to learn," after all, is a basic fundamental in the teaching-learning realm of education.  

While the internet offers vast opportunities to find what we seek in the way of health information, I still have a desire for the traditional illustrated pamphlets that were so long a staple of patient education.  I can attest that even now, in large hospitals that promote themselves as cutting edge, the lack of a patient educational handout means the lack of patient teaching.  Period and end of story.  I have never seen any patient willingly turn the TV to the patient education channel to learn more about their health needs.  A patient sick enough to be bedfast in the hospital is typically not online to search for health-related information.  And many patients can't afford the luxury of a laptop to bring to the hospital--or perhaps they are not internet savvy to begin with. 

There is a real need, in my opinion to preserve the traditional patient education tools. In a pre-op or post-op teaching situation, computer based learning is not conducive to the one-on-one, individualized teaching that needs to take place.  The patient brochures are awesome adjucts to this type of patient education interaction.  Hospitals--start stocking more patient education brochures and making distribution of them a priority--please!! 

Patient Education Publishers of Note

One of my favorite patient education brochures that I've kept is by the Channing Bete publishing company.  Channing Bete has been in this business for decades and now boast a host of patient education products and services.  I've had this booklet so long that I see it's been replaced by an updated version.  The one I have (in two versions, English and Spanish):  "Sooo . . . You're going to have an OPERATION" and "De mondo que . . . le van a OPERAR!"  And the newest versions:  About Having Surgery, About Ambulatory Surgery, and for kids: Same Day Surgery:  A Coloring and Activity Book.  Honestly, these publications are sublime in their simplicity and ability to communicate the need-to-know basics of surgery day to patients and their loved ones.

Krames Education Products and Services is an offshoot of a larger company called Staywell.  My old favorite publication by Krames is called, "Pressure Ulcers, Your Role in Prevention and Treatment" (aimed at nurses.)  Now there is a newer version on their website called,  "Pressure Ulcers Prevention and Treatment." These are great publications for caregivers with wonderfully detailed illustrations and excellent explanations.  Find other worthwhile topics for patient education from their catalog:
Krames Patient Education Print Materials

One thing about physician's offices these days--there are not a lot of actual nurses in these settings.  Nurses are more expensive than medical technicians, so physicians tend to employ more of these unlicensed assistants.  The loss of professional nurses in that setting allows for a gap in patient teaching.  Often in pre-surgery teaching sessions bewildered patients who had already been with their physicians for a previous appointment to determine that surgery was necessary, would admit that they had no real idea what their upcoming surgery entailed.  And for some of the complicated surgeries they didn't know how to spell the procedure correctly in order to search for appropriate information online.  I found that Colen Publishing offers a dozen or so titles to explain surgical procedures (often ones that are in the neurosurgery realm), these titles cover Craniotomy, Laminectomy, Ventricular Shunt, Cervical Fusions and more.  See an example of one of their Tri-Fold Surgery Cards: Anterior Cervical Discectomy and Fusion. I think it would be a great service for a patient anticipating surgery to have one of these nice explanatory tri-folds instead of trying to (alone) search out information online that may or may not pertain to their particular situation and surgery.

Of course the American Cancer Society and National Cancer Institute offer many wonderful publications about cancer, but please don't overlook the three that are available free from the Patient Resource Cancer Guides (3 titles available free to patients & in bulk to hospitals or clinics.) Place your order today:  Patient Resource.Net. 

Some other worthwhile sources of hard-copy patient educational brochures:



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Wednesday, December 16, 2009

How to Give Medication to Infants and Toddlers: Ear Drops and Oral Medications

Yesterday I was writing about corneal abrasions and the medications that a physician will likely prescribe after such an injury occurs.  It occurred to me today that listing some good links on "how to" administer eye drops (and other prescribed medications) to infants or toddlers would be a good idea.

Based on my past years of working as a pediatric registered nurse, I know how difficult it can be to medicate infants and toddlers.  In order to give the medication with the minimum of fuss, it's best to swaddle (wrap) an infant gently but firmly in a receiving blanket so that the baby's arms are fixed at his/her side.  For an older toddler, it may very well take two people to give necessary medication.

Here are two websites with rather nice information about how to give medication to infants and toddlers: 

Great Ormond Street Hospital for Children:  How to Give your Child Eye Drops

From the Ohio State University Medical Center:  How to Give Your Baby Medicine by Mouth

Follow the Doctor's Orders

Give your child medication that is prescribed for him or her.  Don't borrow or share medication meant for someone else.  Store the medication as directed by your pharmacist's instructions.  Most antibiotics will need to be refrigerated.  Continue to give the prescribed medication for the entire period that the doctor has ordered.  Don't stop the medication early because the child "seems better."  Doing so can cause lingering infections that become resistant to the medication.

Do Not Give . . .

Never give aspirin to infants or children.  Check the lable of any medication you intend to give.  If any of the ingredients contain salycilic acids don't give your child the medication.  Check the labels on all of your over-the-counter medications.  Look for "black box" warning labels and other instructions to parents.  Recently many cold and cough medications have been deemed dangerous to young children and the new packaging reflects such information.

Talk to your pharmacist . . .

Pharmacists do more than fill your prescriptions.  They will gladly discuss over-the-counter medications with you and help you find appropriate options for your child.  In addition, consult your pharmacist to determine whether or not the prescribed medication can be made more palatable for your child--by adding "better" tasting flavors by compounding the medication.

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Corneal Abrasion, Corneal Scratch, Pain and Sensation of Something in the Eye

“It feels like something is in the eye, and it's very painful.”

Why I’m compelled to write about this topic today: Recently one of my patients was expected back from surgery after undergoing a complicated procedure to repair a fracture. Shortly before the young man was due to arrive in his hospital room, the nurse from the surgical recovery care unit called to report that he was experiencing severe pain in one eye along with a sensation of “something in the eye.” The surgeon was aware and had ordered an eye flush. Although the nurses in recovery had copiously irrigated the eye with sterile water, the patient’s extreme discomfort persisted. The pain from his orthopedic surgery was nearly eclipsed by the pain and irritation in his eye. Close examination hadn’t revealed any obvious reason for the persistent eye pain. When he arrived on our floor, the patient’s affected eye was “bloodshot,” very sensitive to light, and he was writhing due to the combination of both eye and surgical incision pain. The surgery resident physician was soon at his bedside. She ordered an application of “Lacrilube” ointment to soothe the eye and diagnosed a corneal abrasion. Having participated in the surgery, she remarked that the affected eye “really wasn’t taped closed well enough” during the lengthy surgical procedure.

Corneal Abrasions

There are a number of reasons why a cornea might be scratched or irritated resulting in an abrasion. Although they are extremely tiny, corneal abrasions, are very painful . . . and why not? After all, even a paper cut to our fingertips can cause startling pain. Often a small corneal abrasion will heal itself within 24 hours. There is treatment that may soothe the affected eye, such as sterile artificial tears (see below for further discussion of additional treatments). Keep in mind, however, not all eye pain is due to a corneal abrasion, and not all corneal abrasions may be treated with home care alone.

Some Structures of the Eye

To understand what the cornea is, it’s useful to think of the eye as a room with the cornea being a window. The eyelids are similar to shutters that can be opened or closed. The space between the shutters and the window glass is the conjunctiva. The cornea functions as the window glass does; that is, the light flows through the cornea to enter the eye. Directly behind the cornea is the round, colored iris which functions in much the same way as curtains; the muscles of the iris expand and contract to allow more or less light inside of the “room.” The pupil is the space through which the light passes between the open curtains. The lens is yet another “window pane” that the light passes through before it enters the room. My suggestion is to think of the lens, for this example, as a large glass “sun catcher” suspended from the ceiling just inside the window. Vitreous humor is the gelatinous substance that fills the center of the eye just as normal atmospheric gasses fill up a room in your home. The retina is the back wall of the room just opposite from the window. As light strikes the “wall” (retina) there is inevitably a particular spot where the sunlight is more concentrated. The macula in the back of the eyeball is similar to that part of the room with the brightest exposure to the light. The fovea is an area of the macula which provides the sharpest vision; similarly the brightest spot in the room is best for reading or performing tasks that require sharp visual acuity.

(See a nice depiction of the eyes' anatomy here:  http://www.eyecareamerica.org/eyecare/anatomy /).

A Little More About the Cornea

As mentioned in the preceding paragraph, the cornea functions like the glass of our windows. It’s a protective structure for the more delicate features behind it, and it functions to let light flow into the eyeball. Although the cornea consists of five distinct layers, it is very thin—with a depth of only about 1 mm at its deepest point.

The cornea has an abundance of nerve endings, as a result it’s very sensitive to both touch . . . and pain.. That trait helps protect our vision from trauma as all of our instincts quickly react to try to prevent an injury to the eye. However, corneal abrasion is still one of the most common eye injuries.

How Does a Corneal Abrasion Occur

A person may have no recollection of trauma to the eye and there are numerous scenarios that may result in a corneal abrasion. A poke in the eye (particularly if a fingernail is involved), a branch from a tree, flying glass or metal shards, or a surgical drape or equipment brushing across your eye if it is exposed during a surgical procedure . . . any of these things can cause a corneal abrasion. Debris in the eye can also cause an abrasion, particularly when the eyes are rubbed vigorously or if a contact lens causes friction.

Prevention during Surgery

Taping the eyes closed is a standard preventive measure aimed at protecting the eyes from corneal abrasion. Some surgeries pose a greater risk of a corneal abrasion occurring. Those in which the patient is positioned face down, surgery on the head or neck, and any lengthy procedure carries more risk. Of course in some surgeries taping is contraindicated as the eyes may need to be opened during the procedure. In such cases the anesthesiologist or nurse anesthetist will use their judgment to make the appropriate decisions. Instillation of eye drops, gels or eye ointments may be the decided course of prevention, or special goggles, eye cushions or pads may be used.

Diagnosis

Your doctor may use a combination of fluorescent dye and either a cobalt-blue filtered ophthalmoscope or a “slit-lamp” to make a definite diagnosis of a corneal abrasion. The physician may instill drops to temporarily numb the eye during the exam. If they observe a foreign body present in the eye, it will also be removed during this examination.

Treatment

At one time eye patches were applied when patients suffered a corneal abrasion. This is no longer a standard treatment; however, in some cases your physician may determine that an eye patch is in your best interest. It’s more likely that eye drops or ointment will be prescribed for home use. The drops and/or ointments may include a medication to control the pain, an eye lubricant, a topical antibiotic, or a steroid. Steroid eye drops may be prescribed to reduce inflammation. (Please note, some of the eye drops and ointments may result in temporarily blurred vision). Occasionally, a pain medication to be taken by mouth will be prescribed as well.

If metal shards were responsible for your eye injury, a tetanus booster shot will be needed. If it has been more than 5 years since your last tetanus shot--or if you cannot remember when your last tetanus shot was given--you will should be given a booster shot after the eye examination.

Follow your physician’s orders and use the medications exactly as prescribed. Do not stop the medication sooner than the directions tell you to simply because the eye “feels better.” Continuing the full course of prescribed treatment is important to prevent possible complications later on.

If you have questions about your doctor’s ordered treatment, ask him or her. You have a right to know the reason for the treatment decisions that are made on your behalf.

How long to heal

A small corneal abrasion may heal in a few hours. Often after a night’s sleep the cornea has healed. In the case of a larger abrasion, it may take several days time for complete recovery. It is important to keep from rubbing the affected eye as that may delay healing. If the symptoms suddenly recur after the initial healing phase, consult your physician right away.  Inadequate treatment of a corneal abrasion can sometimes lead to complications such as a corneal erosion.

First Aid for Eye Emergencies

Plan to seek treatment at your urgent care center or ER for any bleeding from the eye, chemical splash, visible scratch or penetrating injury, eye pain, double or blurred vision, nausea and headache.

Do not rub the injured or irritated eye. Wash your hands with soapy water. Remove contact lenses if they are in place. Do not attempt to use any tweezers or cotton swabs to try to treat eye emergencies at home.

Chemical splash to the eye: Start flushing the eye with cool clean water from a sink, bottle, hose, etc. Tilt the head back and to the side. Keep the affected eye wide open and pour the clean water gently but directly into the eye. Make sure the head is tilted away from the “good eye” so that chemicals which are rinsed out don’t flow into that eye during the flushing process. (A child might be more comfortable laying down in an empty bath tub to have the eyes irrigated.) Continue to flush chemicals from the eye continuously for at least 15 minutes. Call 911 or have someone drive you to the ER. If the chemical that splashed into the eyes is known, be sure to provide the name to the healthcare providers at the hospital. For more information see:  
First aid tips for a chemical splash to the eye from the Mayo Clinis.  

Foreign body in the eye: Do not rub the eye. With clean hands, open the eye and allow tears to move the foreign body (such as an eyelash or speck of dirt). Rinse the eyes with cool clear water as explained above if tearing isn’t effective. If an object is embedded in the eye—do not attempt to remove it. Seek medical help in the ER or urgent care center immediately. For more information see: Mayo clinics advice on corneal abrasion and Mayo's first aid advice for a foreign body in the eye.

Bleeding from an eye: Do not put any pressure on the eye, gently cover it with a clean cloth and go directly to the Emergency Room. (The person with the injured eye should not drive).


2009 All rights reserved for content and photos, Carolyn Cooper, MPH, RN
References:

WebMD: http://www.webmd.com/eye-health/tc/objects-in-the-eye-home-treatment and http://firstaid.webmd.com/corneal-abrasion-treatment

Eye Safety for Emergency Response and Disaster Recovery from the CDC: www.cdc.gov/niosh/topics/eye/eyesafe.html

Wilson, S.A. and Last, A. (2004). Management of Corneal Abrasions. American Family Physician. Retrieved 12/16/2009 from: http://www.aafp.org/afp/2004/0701/p123.html

Verma, A. (2009). Corneal Abrasion. Emedicine from WebMD. Retrieved 12/15/2009 from: http://emedicine.medscape.com/article/1195402-overview

First Aid for Eye Emergencies from Prevent Blindness:  http://preventblindness.org/safety/firstaid.html

Tarmey, N. & White, L.A. (2009). Chapter 5, Damage to the Eye. Risks associated with your anaesthetic, Information for patients: the Royal College of Anaesthetists. Retrieved 12/16/2009 from:
http://www.rcoa.ac.uk/docs/Risk_5Eye-damage.pdf


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Tuesday, December 01, 2009

DVT, Blood Clot, Deep Vein Thrombosis



Dangerous blood clots may develop unexpectedly within the deep veins of a lower leg.  Such clots can cause deadly complications when microscopic pieces break off and clog the circulation to distant parts of the body.  Clots that find their way into the brain, lungs, or heart may result in deadly or life-altering complications from stroke,  pulmonary embolus, or heart attack. 

Preventing a DVT is certainly much easier than curing the condition.  In hospitalized patients several methods are used to enhance the flow of blood to the lower legs.  First and foremost, being up and around as soon as possible, and as much as possible after surgery or while recovering from an illness is a major advantage in increasing venous flow and decreasing the chance of clots forming.  Tight white compression stockings (TED hose) may be prescribed depending on the level of risk for the specific patient (see below).  Mechanical "pumps" squeeze the lower legs at regular intervals in another means of prevention.  For patients at the highest risk of DVT, blood thinning medication is injected daily under the skin of the abdomen.   

Greater Risk of Clots for Some Patients

DVT (Deep Vein Thrombosis) can occur in almost anyone. However, certain individuals may be at increased risk for developing a DVT. Risk factors include but are not limited to:
  • Recent surgical procedure (and greater chance of a DVT with a long, intense surgery and joint replacement surgeries)
  • Restricted mobility from bedrest, paralysis, traveling for many hours without taking a break to walk around
  • Active Cancer
  • Congestive Heart Failure (CHF)--if you take "water pills" and are not sure why--ask your doctor if you have CHF
  • Age greater than 40 years old
  • Pregnancy and the postpartum period (6-8 weeks after delivery)
  • Injury to the leg or the deep veins of the leg
  • Smoking
  • Use of certain medications such as birth control pills and estrogen
  • Dehydration
  • Polycythemia
  • Obesity
  • Current smoker
  • Past history of having a blood clot or an inherited family tendency to develop blood clots  
Spot a Clot  . . . a Campaign sponsored by the Venous Disease Coalition

Check out their website to learn more about DVT and related conditions such as:
  • Post Thrombotic Syndrome (PTS) After a DVT is treated and resolved, this chronic condition may result in up to 40% of all individuals.  It's the result of damage done by the clot to the valves that move blood through the vein.
  • Pulmonary Embolis (PE)  Blood clots in the smallest vessels of the lungs.
  • Thrombophila Blood that clots too easily. Hypercoagulability is another word used to describe this condition which can be inherited.
  • Chronic Venous Insufficiency results when the valves in the veins that move blood don't function properly, often occurs from injury to veins caused by a DVT, from varicose veins, or as the result of an inherited condition.
Venous Disease Coalition Patient Education Resources:

The Vascular Disease Foundation has a variety of full-color brochures available for download including a great pamphlet called "Focus on Clots."  (This publication was previously called "Spot a Clot," but otherwise it's the exact same informational card.)
You may also request a copy of these brochures by calling toll free: 1-888-833-4463.

Other related publications you can download:

Provided by the
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Tuesday, November 24, 2009

Another Black Box: Aranesp, Epogen, Procrit, What you should know about drugs that tell your body to make more red blood cells

Erythropoiesis Stimulating Agents (ESAs) tell your body to make more red blood cells. Drugs in this class include:

• Aranesp (darbopoetin alfa)
• Epogen (epoetin alfa)
• Procrit (epoetin alfa)
• There are other brand names & epoetin variants marketed worldwide

The Good News First . . .

Twenty years ago we didn’t have synthetic medications to treat anemia. Depending on the cause anemia was often treated through diet, by administering supplementary iron or vitamin B12, and frequently, by blood transfusions. The 1980's was a decade of concern over the safety of our blood supply due to blood borne pathogens such as Hepatitis B and C and the HIV virus. New technologies in recombinant DNA allowed science to explore and develop innovative alternative therapies.

In 1989, Epogen (epoetin alfa), the first of a class of drugs called erythropoiesis stimulating agents (abbreviated as “ESAs”), was approved by the FDA in the United States to treat patients suffering from anemia due to chronic kidney disease. Epogen was eventually joined by similar ESAs called Aranesp and Procrit and treatment was eventually broadened to include patients suffering from anemia related to chemotherapy.

The benefit to both groups was that they no longer needed to rely on frequent blood transfusions to treat their anemia. ESAs directly influence the body to speed up the production of its own red blood cells by introducing a synthetic version of the hormone erythropoietin. Erythropoietin is a chemical messenger of sorts with the specific mission of instructing our bone marrow to produce more red blood cells. Epogen, Aransep, and Procrit are easily given by a simple injection under the skin from one to three times per week.

So what exactly is anemia? Anemia results when we don’t have enough healthy red blood cells called erythrocytes circulating in our bloodstream. Healthy red blood cells are vital; they carry a protein called hemoglobin which picks up molecules of oxygen from our lungs and delivers it to the tissues throughout our body. We don’t store oxygen in our body but we use it continuously, and our body’s demand for oxygen is constant as oxygen molecules literally fuel every basic function that each cell in our body must perform.

Symptoms of Anemia. Moderate to severe anemia can cause symptoms of weakness, fatigue, shortness of breath, rapid/irregular heartbeat and pale skin. Milder or chronic anemia may cause subtle symptoms or no symptoms at all.

Erythropoietin. This hormone is a chemical messenger with several functions relating to the manufacture of red blood cells, preserving their lifespan in the body, and enhancing the growth of blood vessels. As we develop before birth, erythropoietin is active within our livers. After we are born, erythropoietin is manufactured and released by cells in the kidney.

Kidneys and Anemia. People often don’t think of a relationship between the kidneys and anemia, but when you carefully consider it, it makes sense for the kidney to have this function. Like a waste-water treatment plant adds chemicals based on the scientific observations of the plant technicians, the kidneys have specialized cells that detect decreased oxygen levels in the blood circulating through them, and as a result, these specialized cells release erythropoietin to enhance red blood cell formation and longevity. If the kidneys become diseased and fail, this system of checks and balances is impaired or lost. When ESAs, or synthetic erythropoietin, was first introduced in 1989, the drug was intended specifically for the benefit of patients in kidney failure.

Chemotherapy and Anemia. Cancer cells are bizarre mutant cells that divide rapidly. therefore, malignant tumors can grow large very quickly. The goal of chemotherapy is to target those rapidly-dividing bizarre cells and kill them. Other “good” rapidly-dividing cells in our body get caught in the cross-fire and are also damaged by chemo drugs. Hair is lost when rapidly-dividing cells in the roots are targeted by the chemo drugs. Other fast-growing cells affected by chemotherapy are in the digestive tract; that’s why mouth sores, nausea, and vomiting are a common consequence of chemo. The body’s rapidly dividing blood cells (red cells, white cells, and platelets) are also among the good cells that fall prey to chemotherapy. The anemia that results from chemotherapy is not caused by a lack of erythropoietin, but ESAs were approved by the FDA in 1993 to treat anemia to reduce the amount of blood transfusions necessary for patients suffering from chemotherapy-induced anemia.

Sobering News about ESAs . . .

All medications have both benefits and risks. In the U.S. the FDA places "black box warnings" on the medication labels and inserts of drugs when research suggests there is a risk of serious adverse effects. The first black box warning for ESAs appeared in March of 2007. Eight months later in November 2007, the black box warning was emphatically strengthened by the FDA.

Both the chronic renal failure and chemotherapy patients were found to have some increased risks when using ESAs. Patients with certain types of cancer were found to be at risks of tumor progression and decreased survival when taking ESAs to increase red blood cell production. Chronic renal failure patients were found to be at increased risk of developing heart attack, stroke, blood clots, heart failure and death if their ESA dose was high enough to cause them to make more than recommended number of red blood cells.

The FDA’s guidance to physicians was very specific on the recommended dosage to achieve good results without increasing patients’ risks for a bad outcome. Further, their guidance suggested that physicians specifically discuss the risks and benefits of these medications with their patients.

What’s Inside the Black Box . . . guidance for physicians about prescribing:

For patients with cancer: ESAs should only be used to treat anemia caused by chemotherapy—not to treat anemia from any other cause. After chemotherapy is finished, ESAs should no longer be used. Risks of tumor progression and decreased survival were noted in some clinical trials. The FDA strongly recommends that healthcare professionals discuss these risks with their patients before this therapy is started.

For anemic patients with chronic renal failure: Treat with the lowest level of the drug which will maintain hemoglobin levels within the target range of less than 12 g/dL. The established goal for this group is to maintain hemoglobin between 10-12 g/dL, because the risk for death and serious cardiovascular events increases when higher hemoglobin levels are achieved on ESA therapy. Further, it’s recommended that ESA therapy be discontinued if the patient’s hemoglobin levels remain so low that blood transfusions are still required.

What the FDA recommends for physicians and other healthcare professionals to discuss with their patients:

1. The primary goal of treatment with erythropoiesis stimulating agents (ESA) is to increase the number of red blood cells in order to avoid receiving blood transfusions.
2. These medications require at least two weeks of treatment before there is an increase in the number of red blood cells, and the dose may be adjusted periodically, but not more often than every four weeks.
3. ESAs increase the patient’s chance of blood clots and the risk of dying may be greater in certain circumstances.
4. Patients should keep appointments for blood tests so hemoglobin levels can be monitored.
5. Patients should monitor their blood pressure and call their healthcare provider for changes outside of the range that has been established for them.
6. Call the healthcare provider if they experience any of the following symptoms:
  • Pain and/or swelling in the legs
  • Worsening in shortness of breath
  • Increases in blood pressure
  • Dizziness or loss of consciousness
  • Extreme tiredness
  • Blood clots in hemodialysis vascular access ports

What the FDA wants patients to know about treatment with Aranesp, Epogen and Procrit . . .

Patients with cancer who are currently using or considering the use of an ESA should know the following:
• ESAs may shorten your survival time or may cause your tumors to grow faster.
• ESAs should only be used to treat anemia caused by chemotherapy and not other anemia from other causes in patients with cancer
• ESAs should not be used to treat the symptoms of anemia, such as fatigue or improve the quality of life in patients with cancer. The goal of treatment with ESAs is to avoid blood transfusions
• Treatment with an ESA should be stopped after you complete your course of chemotherapy.

Patients with chronic kidney failure (this includes both patients on dialysis and those not on dialysis) who are currently using an ESA should know the following:
• Your hemoglobin level should be checked regularly to make sure it stays between 10 and 12 g/dL.
• ESAs can increase your chance of heart attack, stroke, blood clots, heart failure, and death when they are given to maintain higher hemoglobin levels.
• If you are not responding to treatment with an ESA (your hemoglobin levels are not increasing) ask your doctor if you need to be checked for other causes of anemia.

Report Adverse Reactions to the FDA: Healthcare professionals are to report adverse and unexpected reactions with these meds to the FDA MedWatch reporting program online or by phone: 1-800-332-1088.

Links to more information about ESAs:

• Comprehensive information about ESAs from the U.S. Centers for Medicaid and Medicare Services: www.cms.hhs.gov/determinationprocess/downloads/id203d.pdf
• Kidney Disease and Anemia: http://kidney.niddk.nih.gov/kudiseases/pubs/anemia/
• Anemia and Kidney Disease: http://www.aakp.org/aakp-library/Anemia-in-Chronic-Kidney-Disease/
• A plus: Anemia and Kidney Disease from Anemia.org: http://www.anemia.org/patients/information-handouts/kidney-disease/
• ESA use for anemia in cancer patients: http://www.medscape.com/viewarticle/571464




.(All rights reserved, Carolyn Cooper, MPH, RN, 2009)  .. . .

Thursday, November 12, 2009

How to Take Care of Your JP Drain at Home (Jackson-Pratt Surgical Drain)

It's not unusual to be sent home from the hospital after surgery with a surgical drain still in place. Typically a nurse will have taught you (or your loved one, if you’re squeamish) how to take care of  the drain at home and they probably gave you some paperwork with instructions.  Sometimes, however, such teaching is given after surgery when the patient is groggy or in pain and family members are tired and ready to just get on the road towards home.  The instructions may get lost in the shuffle of paperwork you were handed at discharge.  For this reason I wanted to make a blog entry that includes some basic information about the JP drain and includes links to patient education sheets from reputable physicians and hospitals.

About the Jackson-Pratt (JP) Drain . . .


The JP drain is a soft, pliable bulb drain that is either tunneled directly into a surgical incision, or more often into another smaller "stab" incision right next to the main incision. The purpose of the JP drain is to allow the large surgical incision to heal well by draining blood and thin serous material that can build up behind fresh incisions.


The bulb part of the JP drain is connected to the surgical incision by means of a long plastic tube that’s sutured in place on the skin where it enters the body. When the bulb is compressed (squeezed together), it provides constant suction that draws any accumulating fluids such as blood, pus, or other thin drainage from the incision, through the tube and into the bulb. On a regular basis (at least once a day), the fluid that is collected in the bulb is emptied by opening the small plug in the top and squeezing the fluid into a measuring cup.  While the empty drain is still unplugged, the drain is squeezed together to remove as much air as possible so it is mostly “flattened.”  Then the plug is recapped. The flattened bulb gently expands as it again slowly suctions fluid from the incision.


Keep Track of the Amount of Fluid . . .


The amount of fluid, date and time, and any ususual details about the fluid (color, thickness, clots, smell) is written on a paper for the doctor to review at your appointment, then the drainage is emptied into the toilet and flushed away.  Keeping track of the amount of fluid emptied from the bulb is important. This information allows the physician to know if the wound is healing according to schedule . . . or if there are complications that require further attention such as an unusual amount of blood coming from the wound, a foul smell to the discharge, or an unusually large volume of fluid. When the drainage falls to a certain level, usually a few days after surgery, the drain is easily removed by a physician or nurse at the doctor's office.


I’m by no means an artist, but I’m including a couple of my own sketches here. The websites (at bottom) often include great drawings or photos of the drains and their care, but of course they have  copyrights to their art and photos so I’ll give you just a basic idea.


Parts of the JP Drain
Drain reservoir bulb—about the size and shape of a large lemon or (in my mind) a hand-grenade. Made of soft flexible semi-transparent silicone with an attached drainage tube that is sutured into a slit on the body near the surgical incision. In order to collect drainage from the tubing, the bulb plug must be opened, air is squeezed out until the bulb appears mostly flat. While still squeezing the bulb flat, the plug is replaced. As the bulb fills with fluid, it may expand. The bulb is emptied at least daily or when full and the drainage is measured and recorded and reported to the physician.


Drain aperture—the hole with a plug, this is where you empty the drainage that is collected. It reminds me of a beach-ball plug and works exactly the same way.


Drain tubing—hollow tubing made of a soft semi-transparent silicone. It’s connected to the drain reservoir bulb. Sometimes the tubing may accumulate drainage that becomes a clot which blocks the drainage.  This can be cleared by a gentle pinching motion of the tubing just above the clot, away from the body and towards the bulb, it is usually recommended to “milk” the tubing in this way when needed to keep it draining freely.


Surgeries that result in a drain . . .


. . . includes just about any that may result in a large incision, for example, breast surgery, thyroid operations, weight loss surgery, abdominal surgeries, and operations on the kidneys or bladder.  There are other types of surgical drains as well, but the JP is one of the most common.


Keep the JP Drain from Pulling on the Incision


To keep the weight of the drain from pulling on the incision, a flap of tape is applied near the bulb. A safety pin is pinned through this tape flap and then pinned to the patients clothing in such a way as to take up the slack of the tubing. (If you have more than one drain, they will each be numbered for easy reference on the tape flap.)  Be careful not to poke a hole through the tubing of your drain!


I don't seek advertising or any funding for my blogging, but I do point out commercial products that may be helpful to my readers.  Here are two products that I came across created by patients in order to more comfortably manage their JP drains post-operatively.
Links to Reputable Websites with Instructions on JP Drain Care (including log sheets to record drainage).  Most of these include log sheets you can copy to record your drain output . . . or you can just write it on a piece of notebook paper--that would be just fine, too, as long as you include the date/time/amount (and drain number if you have more than one.)


Youtube Videos
 
Youtube doesn't have many videos about care of the JP drain.  I'm surprised.  I did find two amateur videos posted there by breast cancer patients who are demonstrating emptying their JP drains at home.  These brave ladies are doing a service by posting their experiences to help others.  I applaud their willingness to do so and want to include links to their videos here.  These are not professional videos, but they give you a glimpse of other people at home with their JP drains in real life:
  • An amateur video in which Deborah demonstrates emptying and measuring the contents of her four surgical drains.  Note: Deborah is wearing a brassiere, but does have some skin of her upper torso (not breasts) exposed. I know my blog readers come from all walks of life, so if exposed female flesh is offensive to you, this is not a video for you.  I think it is interesting to see how the output of each of Deborah's drains varies slightly in amount, color, and consistency.
  • Sylvia Soo demonstrates emptying of her two JP drains.  This amateur video starts out SLOW and very playful, but if you hang in there for a few seconds, Sylvia comes on camera to show how she cares for her two drains. She does a good job of demonstrating “milking” the drain to remove clots and measuring the drain “output.” Sylvia is completely covered by clothing in this video, so not to worry if bare skin offends you.   



. . . ..(All rights reserved, Carolyn Cooper, MPH, RN, 2009) . .